Swim classes designed for autistic youth

July 4th, 2009

The Autism News | English


Sandy Huffaker for The New York Times

DELAND — Swimming at the YMCA is good for all children, but executives at local Easter Seals and YMCA organizations believe it’s especially good for youngsters with autism.

On Monday, sessions will open to beginning swimmers who need specialized attention.

Lynn Sinnott, president of Easter Seals Volusia and Flagler Counties, says instructors at the DeLand and Port Orange Family YMCAs are now equipped with the adaptive tools and skills to teach youngsters with autism who are 3 to 12 years old.

Parents had asked Easter Seals for swimming opportunities for their children and, since Sinnott knew her organization could not fulfill the requests alone, she approached Teresa Rogers, president and CEO of Volusia Flagler Family YMCA.

To register for the sessions, go to the DeLand YMCA, 761 E. International Speedway Blvd., or the Port Orange YMCA, 4701 City Center Parkway, or visit the YMCA online at vfymca.org for more information. Or for details, call the DeLand Y at 386-736-6000 or the Port Orange branch at 386-760-9622.

Today, as many as one in every 150 children is diagnosed with autism, making autism more prevalent than Down Syndrome, childhood diabetes and childhood cancer combined.

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Student Develops Robot For Autism Research

July 4th, 2009

The Autism News | English

By Mark Roth, Pittsburgh Post-Gazette

Marek Michalowski’s favorite robot looks like an oversized Easter peep that can bust some moves.

His name is Keepon, and he is best known as the star of a YouTube video — dancing to an infectious tune by the rock group Spoon — that has been viewed more than 2 million times.

But Keepon is much more than a disco robot.

In the hands of Mr. Michalowski, a Ph.D. student in robotics at Carnegie Mellon University, and his mentor, Hideki Kozima of Miyagi University in Japan, Keepon is also being used to study how children interact socially, and whether the robot might particularly be able to help children with autism.

Mr. Michalowski has now formed a company, BeatBots LLC, and said he hopes the revenue from selling commercial versions of Keepon will one day help fund their research.

For the past few years, Mr. Michalowski and Dr. Kozima have been tracking groups of preschool children in Japan as they interact with Keepon in their classrooms.

Despite being only 5 inches tall, Keepon has enough room to accommodate a camera behind its eyes and a microphone behind its nose. That allows the researchers to observe the children from a robot’s eye view and change Keepon’s movement in response to what the children say and do.

Videos of some of those encounters show the children feeding Keepon pretend food, giving it pretend medicine when it has a Band-Aid on its head, and trying to find Keepon’s lost hat. It also shows the girls protecting Keepon after one of the boys whacks its head with a stick.

After shooing the boys away, one of the preschool girls turns to another, shakes her head, and says, “Boys are all the same.”

The most poignant video, compiled over several weeks, shows one girl with autism who slowly begins to forge a relationship with the robot. In the early scenes, she is plastered against a far wall and won’t come near Keepon. Eventually, as her curiosity increases, she pulls her caregiver by the hand to come closer to the robot. Then she touches Keepon with a xylophone stick. Then, carefully, with her foot.

Finally, she cradles the robot’s head, coos toward it, and after weeks have gone by, gives it a kiss.

“You can imagine how the mother, when she was watching this video, was reduced to tears,” Mr. Michalowski said, “because she so rarely saw that interaction herself, and to see her daughter doing this through the robot was very moving.”

Despite having no arms or legs, Keepon manages to achieve lifelike movement with just four ranges of motion — swiveling side to side, rocking side to side, tipping to the front and back, and bouncing.

After attending Yale University and getting bachelor’s and master’s degrees in computer science and psychology, Mr. Michalowski met Dr. Kozima through one of his professors and asked if he could intern with him in Japan.

During his first stint there, Dr. Kozima “put a Keepon on my desk and said, ‘Do something with it,’ and the first thing I thought was, ‘I think Keepon wants to dance.’ “

Mr. Michalowski was already a fan of the Austin, Texas, rock group Spoon, so he programmed the robot to make random combinations of movements in response to the heavy beat in the group’s song, “I Turn My Camera On,” and that became the video that’s been viewed on YouTube.

It became so popular, he said, that Wired magazine paid to produce a professionally directed video showing Dr. Kozima carrying Keepon around Tokyo, dancing to another Spoon tune and interacting with passers-by. Recently, a similar video was completed in Seoul, South Korea, he said.

While Keepon may have a therapeutic role with children, Mr. Michalowski’s Ph.D. work is looking at a more fundamental issue: How does movement shape our interactions with each other?

We all need to coordinate our body language with each other to have successful conversations and social contact, Mr. Michalowski noted. “For instance, the frequency with which you nod when someone is talking to you shows whether you understand what someone is saying, and all this turn-taking is a lot like a dance that we’re not conscious of all the time, but if you don’t do it right,” your partner will think you aren’t listening or that something is wrong with you.

Ironically, he said, if someone doesn’t move in a normal way, such as a person with autism, “you might even call the person robotic, because their timing is not quite right.”

Dr. Kozima designed Keepon to be as approachable and unthreatening as possible, and Mr. Michalowski believes that in some ways, it can actually come across as more humanoid by not looking so much like a human being.

“People ask, ‘Why don’t you give it some arms or a mouth?’, but the point is to take away as much as you can. We probably could even take away the nose. It’s the bilateral symmetry and the two eyes that are the most important visual cues for movement.”

One way of understanding that principle, he said, is to look at successful animated films. His favorite example is two films that came out in 2004 — “Polar Express” and “The Incredibles.”

“Polar Express” tried to make its characters as realistic as possible, while “The Incredibles” used a much more cartoonish approach to its characters.

“These two movies both had the same amount of computing power, the same kind of animators’ talent, but one tried to be photorealistic and one tried to be more of a caricature,” he said, “and of course, ‘The Incredibles’ was a much more successful movie.”

In the same way, he said, it is actually harder to make a “realistic” robot that people can relate to.

“You can choose to create a very complicated robot face that has a lot of controllable parts,” he said, “but if you’ve got 12 motors, you’ve got to coordinate to express an emotion just right, that’s not only a lot more work but has a much higher risk of failure.”

No matter what shape “emotional robots” take in the future, he does not necessarily see them looking like miniature humans.

“Just because we make robots social doesn’t mean they have to be humanoid. Keepon shares very little morphologically with a person.”

In fact, the last thing he expects is a robot like “Rosie” from “The Jetsons.”

“If we look at where household robots are going, it’s probably not going to look like a humanoid servant that makes sandwiches and washes dishes and mops the floor. That would be a very inefficient way of accomplishing tasks that would be solved more easily by specialized automation.”

Related Video:

Source: http://www.post-gazette.com/pg/09061/952629-298.stm

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Help for People Who Are Sick and Tired | Cookbook

July 3rd, 2009

The Autism News | English

By The Super Allergy Girl

There is a growing interest in the relationship between food and health as more and more consumers reach for organic foods and foods made without chemicals, hormones and additives. Motivational speaker and specialty cookbook author Lisa A. Lundy makes available for the first time to the public a document aptly titled “Could Food Be Making You Sick and Tired?” which you can now download free from her website. The document is an excellent primer addressing why there is such an explosion in the gluten-free diet, the value that the Feingold Association (www.Feingold.org) offers to people who want to be healthy, as well as the prevalence of celiac disease and other health conditions that are often helped by a change in diet including autism, ADD, ADHD, gastrointestinal issues, Crohn’s disease, irritable bowel, behavioral, emotional and learning issues in children, allergies, depression and anxiety for starters.

Once source for people feeling sick or tired can be undiagnosed celiac disease. According to the University of Chicago’s Celiac Disease Program, just over 3 million Americans have celiac disease, yet 97 percent of the people with celiac disease are undiagnosed. Celiac disease is more common than several other diseases that have become “household” words such as epilepsy, cystic fibrosis, hemophilia, Parkinson’s disease, ulcerative colitis, Crohn’s disease, rheumatoid arthritis, and multiple sclerosis.

Celiac disease is an autoimmune disorder that can affect both children and adults. In people with an active case of celiac disease, eating gluten, an amino acid sequence found in wheat, barley, rye, some oats and other grains containing gluten, triggers the body’s immune response and can damage or destroy the villi in the small intestine. While there is no cure for celiac disease, strict adherence to a gluten-free diet is the recommended treatment. Undiagnosed and untreated celiac disease increases the risk of cancer by 200-300% according to a fact sheet produced by the Celiac Sprue Association USA, Inc., a non-profit consumer organization dedicated to supporting individuals with celiac disease has a website with information and resources on the topic: www.CSACeliacs.org

“More and more Americans are reaching for organic foods and foods made without additives, preservatives and food dyes because consumers are realizing that food can have a big impact on how they feel. U.S. food manufacturers are reacting to consumer demand and preferences by removing additives,” Lundy stated. “It is an exciting time for consumers as we now see some of the major food producers on TV promoting the fact that their food is either organic or made without hormones, antibiotics, preservatives or additives” Lundy said.

Lundy is the author of The Super Allergy Girl™ Allergy & Celiac Cookbook (From A Mother Who Knows™), a gluten-free, casein-free, dairy-free, egg-free, peanut and tree-nut free and other allergen-free resource for both the beginner and experienced baker. She has more than a decade of experience with food allergies and celiac disease and has taught gluten-free baking classes in the Western New York community for many years.

Her cookbook, with more than 225 excellent recipes and over 100 pages of essential information has received extraordinary reviews from other mothers as well as from internationally known physicians like Doris J. Rapp, M.D. www.DrRapp.com. Order now to receive 10% off the list price of this exceptional book from www.TheSuperAllergyCookbook.com using the promotional code SICKandTIRED on the order. The 10% discount expires on July 31, 2009, and has a limit of one per customer.

Baking Videos for Allergy-Free Foods:

One Gluten-free, Allergy-free Recipe Multiple Uses: Part I

A terrific, versatile recipe used to make gluten-free and allergy-free rolls, French bread, Danish, waffles, coffee rolls, pizza crust, and bread sticks! Preheat oven to 350˚F.

One Gluten-free, Allergy-free Recipe Multiple Uses: Part II

Part II of the versatile recipe used to make gluten-free and allergy-free rolls, French bread, Danish, waffles, coffee rolls, pizza crust, and bread sticks!

Tips for Gluten-Free and Allergy-Free Baking

Suggestions include using an oven thermometer, measurement equivalents, rolls vs. bread, and proofing yeast.

Special Pans for Special Effects in Gluten-Free Baking

Get a look at some of the various specialty baking pans that will give your gluten-free, casein-free, and allergy-free foods a great look

Save Time and Money on Gluten-Free and Allergy Diets

Great time-saving and money-saving suggestions for those on special allergy-free and gluten-free diets.

Ready-Made Gluten-Free, GFCF, and Allergen-Free Foods

See some of the commercially available gluten-free and GFCF foods for consumers on special diets.


Gluten-Free, Casein-Free Candy Making–Getting Started

Chocolates that are gluten-free, casein-free and allergy free are easy to make at home with your children.

Coloring Eggs for the Egg-Allergic

Here’s an alternative to dyeing eggs for those who are allergic to real eggs. See how you can have just as much fun with wooden eggs and paints!

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Mother’s appeal to help little Millie, 7

July 3rd, 2009

The Autism News | English


Seven-year-old Millie Moody who needs a safer garden to play in

By Rutland & Stamford Mercury

A MOTHER of a seven-year-old girl with severe disabilities wants to raise £2,000 to make her garden safer for her daughter to play in.

Millie Moody – who has Down’s syndrome, Asperger syndrome and is registered blind – loves playing outdoors at her council-owned home but mum Gail, 50, says it is unsuitable for her because it has uneven concrete steps, ledges and sharp edges.

She wants to create a safe, flat area for Millie at the home in Cornwall Road, Stamford.

South Kesteven District Council says it is willing to help the family but cannot fund all the changes Gail wants. Official met her yesterday to talk about the problems.

Gail is hoping generous businesses and members of the public will donate towards her appeal to raise the cash to carry out the work.

She said: “Millie is a very independent child and needs the release of being outdoors, but at the moment the garden is not safe to play in.”

Gail, who gave up working in public relations to be Millie’s full-time carer, says her daughter frequently trips and has suffered cuts and bruises, meaning she has to keep be monitored at all times.

Bourne-based Exterior Enhancements Landscape Contractors has already offered to help the family.

A South Kesteven District Council spokesman said: “We fully sympathise with Miss Moody and want to be as helpful as we can.”

Source: http://www.stamfordmercury.co.uk/news/Mother39s-appeal-to-help-little.5425352.jp

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Attorney Mantese on Groundbreaking Autism Case

July 3rd, 2009

The Autism News | English

By Brenda Craig

Troy MI: Attorney Gerard Mantese appears to have struck a very substantial blow to bad faith health insurance companies that routinely deny claims for treatment of autistic children. In a groundbreaking case, Mantese forced Blue Cross Blue Shield to concede that it was wrong to categorize behavioral therapy for autistic children as experimental treatment and use that argument to deny claims.

Autism Therapy“The notion that behavior therapy is experimental is absurd and indefensible,” says Mantese. “I think with this victory here in Michigan it makes it difficult for other insurance companies to ignore or deny coverage.”

His client and the 100 other Blue Cross Blue Shield insured families with autistic children will now have their claims paid back to May 1, 2005 by virtue of an out of court settlement. For the families, it is a life-changing event. “This care is expensive,” says Mantese. “Sometimes families had to choose between paying for care for their children and paying their mortgage. Some people didn’t have the funds to pay for this care and many families are deeply in debt over it.”

The settlement also allows Blue Cross Blue Shield policyholders who have not made a claim to the insurer, but who have paid for treatment for autistic children out of their own pockets, to be reimbursed for costs.

When Mantese agreed to challenge Blue Cross on behalf of the family of Christopher Johns, one of the first things he did was begin to review the scientific data on autism. “We reviewed the literature and once we did, we knew that the claim by Blue Cross or any other insurer that the established care was ineffective would be baseless,” says Mantese.

Mantese, who prides himself and his firm on being thorough in their approach to every case, then wanted to see the treatment at work. “This therapy is based on decade’s old principles of behavioral therapy–and after I met with doctors and psychologists at Beaumont Hospital in Troy and saw their work and their results, it was clear to me these children needed to have access to this care,” he says.

In the lead up to the trial, Mantese filed a motion to compel Blue Cross to produce internal documents showing that its own research indicated that behavioral therapy does work for autistic children. “Once we took the depositions of the top doctors at Blue Cross and we reviewed their files it was like the emperor had no clothes on,” says Mantese. “They simply had no defense.”

Since the settlement, Mantese says his phone is ringing off the hook with inquiries from other families across the country that have been denied claims for treatment for their autistic children based on the similar arguments that behavioral therapy is ineffective.

Mantese & Rossman is a relatively small firm with six lawyers. Mantese says the firm likes to take on cases that will have “some societal impact”. This one may indeed have that kind of horsepower that Mantese seeks in his cases. He says he is aware of a number of other healthcare providers who take a similar position about claims for the coverage of autistic children. “We are looking at them,” says Mantese. “They are in our sites.”

Source: http://www.lawyersandsettlements.com/articles/12470/lawyer-interview-Mantese.html

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Mon enfant est-il hyperactif ?

July 2nd, 2009

The Autism News | Français


Plusieurs critères permettent de distinguer entre différents types de comportement

De son appellation exacte, trouble de déficit de l’attention avec ou sans hyperactivité (TDAH), l’hyperactivité est une maladie qui se définit comme un trouble de l’activité motrice et de la capacité de concentration de l’enfant, qui présente un décalage net par rapport au niveau de développement normalement atteint à son âge.

Par Benhammou Houyam | LE MATIN

L’enfant a alors une tendance à être très impulsif, parfois agressif. Mais, surtout, il a une capacité de concentration anormalement faible. Contrairement à ce que l’on peut penser, cette pathologie n’est pas une nouvelle découverte. Elle a été décrite cliniquement dès le début du XXe siècle, mais ce trouble, a probablement, toujours existé. Il se rencontre partout dans le monde et dans toutes les classes sociales. C’est une maladie de plus en plus médiatisée, mais encore mal reconnue au Maroc. Pour preuve, il existe encore très peu de centres spécialisés dans le traitement et l’accueil de ces enfants. On estime aujourd’hui que l’hyperactivité affecte entre 3 et 6 % des enfants d’âge scolaire avec une prépondérance chez les garçons, les filles souffrant de TDAH sont plus difficiles à diagnostiquer.

Causes et facteurs de risque
En général, les capacités de concentration de ces enfants évoluent après 5 ans et une amélioration notable du comportement apparaît vers 8 ans. Toutefois, il peut subsister un certain nombre de problèmes comportementaux et de difficultés de perception. Tendance à la distraction, agressivité et immaturité affective peuvent persister. L’hérédité semble être un facteur déterminant et on retrouve souvent, dans les antécédents familiaux de l’enfant hyperactif, un parent ayant présenté les mêmes symptômes. A cela s’ajoute, un certain nombre de causes fondées sur des antécédents de complications pré ou périnatales, ou de lésions, d’infections ou d’intoxications au cours de la première enfance. Pour beaucoup de spécialistes, les anciens prématurés, surtout de poids de naissance inférieur à 1500 g (toxémie, malnutrition in utero, alcoolisme ou syndrome foeto-alcolique, anoxie néonatale, ictère nucléaire…Wink seraient très souvent à la source de cette anomalie. Le tabagisme de la mère, les conditions socio-économiques défavorables, les anomalies audiovisuelles, la phénylcétonurie, l’autisme, l’intoxication par le plomb (saturnisme), l’épilepsie temporale ont été également incriminés. Les traitements par les antidépresseurs tricycliques pourraient jouer un rôle favorisant chez certains enfants présentant un trouble neurochimique héréditaire. Les troubles de la glycémie ont été incriminés sans preuve. Le manque de vitamine B également. Une insuffisance du métabolisme des catécholamines a été évoquée. Un retard dans la maturation cérébrale dû à un ou plusieurs facteurs nocifs est également soupçonné.

Signes alarmants Les trois principales caractéristiques du TDAH sont l’inattention, l’hyperactivité et l’impulsivité. Elles se manifestent chez l’enfant avec une difficulté à être attentif de façon soutenue à une tâche ou à une activité particulière. L’enfant est facilement distrait. Cependant, s’il porte un grand intérêt pour une activité, il contrôle mieux son attention. Mais aussi avec des erreurs de distraction dans les devoirs scolaires, les travaux ou les autres activités, une difficulté à commencer et à terminer ses devoirs ou ses autres tâches, une tendance à éviter les activités qui nécessitent un effort mental soutenu, une impression que l’enfant ne nous écoute pas lorsqu’on s’adresse à lui. L’enfant trouvera également du mal à retenir les consignes, à s’organiser. Il aura tendance à perdre fréquemment des objets personnels (jouets, crayons, livres, etc.). D’autres signes plus alarmants peuvent prévenir les parents de l’hyperactivité de leur enfant. Ainsi un hyperactif aura tendance à remuer souvent les mains ou les pieds, à se tortiller sur sa chaise. En classe ou ailleurs, il ne pourra jamais rester assis. Grimper partout, courir dans tous les sens et parler sans arrêt sont les syndromes les plus flagrants. Quant à l’impulsivité, elle peut être dépistée aussi aisément, puisque l’enfant aura tendance à interrompre les autres ou à répondre à des questions qui ne sont pas encore terminées. Il imposera sa présence, et fera irruption dans les conversations ou les jeux, il n’attendra jamais son tour. Son caractère sera imprévisible et changeant avec de fréquentes sautes d’humeur. Au final, cela donnera un enfant très bruyant, antisocial, voire agressif, ce qui peut générer de l’isolement, d’où les autistes hyperactifs.

Existe-t-il des traitements efficaces ?
Il n’existe pas de traitement curatif. L’objectif de l’intervention est d’atténuer les conséquences du TDAH chez l’enfant ou l’adulte, c’est-à-dire ses difficultés scolaires ou professionnelles, ses souffrances liées au rejet qu’il subit souvent, sa faible estime de soi, etc. Créer un contexte qui permettra à la personne atteinte du TDAH de vivre des expériences positives fait donc partie de l’approche préconisée par les médecins, les psycho-éducateurs et les orthopédagogues. Les parents jouent un rôle crucial. En effet, bien que de nombreux professionnels accompagnent l’enfant et la famille, « les parents demeurent les “thérapeutes” les plus importants pour ces enfants», affirment les spécialistes. Il n’est pas facile d’établir un diagnostic de TDAH, car les mêmes symptômes peuvent résulter de troubles divers en rapport plus ou moins étroit avec le TDAH. Par conséquent, le diagnostic reposera sur une évaluation approfondie de l’enfant et de son milieu de vie. Le médecin s’intéresse d’abord à son développement psychomoteur.
La consultation se fait en présence des parents qui seront invités à dresser un historique du développement de l’enfant. Des tests psychologiques et neuropsychologiques peuvent aussi être utiles afin d’évaluer le quotient intellectuel et le potentiel d’apprentissage scolaire de l’enfant. Ce dernier est finalement interrogé sur ses difficultés actuelles.

Les parents, assistés par le médecin et d’autres professionnels, doivent aussi se pencher sur ces questions : en classe, l’enfant vit-il un problème d’attention ou d’intérêt ? S’agit-il d’un manque de motivation qui se manifeste uniquement durant certaines activités ? S’agit-il d’un enfant agité ou hyperactif ?
Certains stimulants sont prescrits pour le TDAH, et paradoxalement, ces stimulants légers du système nerveux central apaisent l’enfant, améliorent sa concentration mentale et lui permettent de vivre davantage d’expériences positives. On observe souvent une amélioration des résultats scolaires. Les relations sont aussi plus harmonieuses avec les parents et les amis. Chez certains enfants, les effets sont spectaculaires. En général, on ne prescrit pas de stimulants avant l’âge scolaire. Il arrive néanmoins qu’on l’envisage chez des enfants plus jeunes.
—————————————————————–

Adultes hyperactifs, osez demander de l’aide!

Lorsque nous reconnaissons notre souffrance ou notre difficulté, il n’est pas sans intérêt de pouvoir nous confier à une personne neutre qui peut nous aider à prendre du recul. Consulter notre médecin de famille, un psychologue, un travailleur social est un excellent moyen pour départager ce que nous vivons. Le professionnel devra prendre le temps de nous écouter, de poser des questions, de vérifier notre état de santé, de nous suggérer des examens supplémentaires au besoin, afin de bien cerner notre difficulté. Le déficit d’attention commence à être reconnu comme un trouble de santé mentale distinct chez les adultes, et peu de professionnels sont à jour dans leurs connaissances à ce sujet.

Normalement, le professionnel devrait prendre le temps pour reconstituer notre histoire personnelle, de faire un examen neuropsychologique à l’aide de questionnaires ou de tests psychologiques, de vérifier nos antécédents médicaux (accidents à la tête, maladies, etc.) et nos habitudes de vie. Le médecin devrait également faire un examen neurologique sommaire. Enfin, le professionnel devrait essayer d’éliminer toutes les autres causes possibles à la difficulté d’attention, de façon à poser le bon diagnostic et surtout apporter le soulagement approprié à notre état. Il est enfin important que nous puissions poser des questions au professionnel sur notre difficulté et que celui-ci puisse y répondre. Le climat de confiance entre le medecin et le patient est essentiel dans le traitement du déficit d’attention. Il faudra peut-être oser nous adresser à plusieurs professionnels tant que nous ne trouvons pas quelqu’un qui puisse nous rassurer et nous éclairer.

Source: http://www.lematin.ma/Actualite/Journal/Article.asp?idr=116&id=116160

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Aged-out foster child faces possible homelessness

July 2nd, 2009

The Autism News | English

BY CAROL MARBIN MILLER | Miami Herald

For Selim Isimer’s next birthday, his parent — the state of Florida — plans to kick him out of the house.

Being shown the door on your 18th birthday would prove daunting for any foster kid. Twenty percent end up homeless without public assistance.

For Selim, it would be disastrous: He has autism and mental retardation.

He can’t read or write, and speaks like a preschooler.

For about a year, Selim has been raised by the Department of Children & Families, which has spent $6,000 each month for his care at a North Miami group home for disabled children.

Child welfare administrators were hoping another state department, the Agency for Persons With Disabilities, would pay Selim’s bills when he ”aged out” of foster care.

But disability administrators say their hands are tied: Selim is in the United States illegally. And they cannot spend taxpayer dollars to pay for his care.

Time runs out for Selim on July 11, his 18th birthday.

”He could get picked up by immigration at any moment,” said Michelle Abarca, one of his attorneys at the Florida Immigrant Advocacy Center.

In a March report, the advocacy group called healthcare at immigration lockups “poor and sometimes appalling.”

”Imagine explaining that to a child like him,” Abarca added.

“It’s very disturbing.”

Though the details of Selim’s case may be unusual, his plight is not.

JUVENILE COURTS

Undocumented children — and the parents who bring them here — have become a common demographic in South Florida’s juvenile courts. So common, in fact, that child welfare administrators have contracted with immigration attorneys to work full time at the Miami Children’s Courthouse.

Administrators at DCF and Our Kids, which provides foster care services for the state in Miami, declined to discuss Selim’s case, citing confidentiality. Our Kids has been overseeing the boy’s case, and is paying his attorneys to represent the teen before immigration authorities.

DCF Secretary George Sheldon told The Miami Herald Thursday he planned to speak with his counterpart at APD, Jim DeBeaugrine, to find an alternative to rendering the teen homeless.

”Let me go out on a limb and say that will not happen,” Sheldon said. “This kid will not be without services on July 11.”

John Newton, APD’s general counsel, also declined to discuss Selim’s case, citing the confidentiality of agency records.

In general, Newton said, ”the agency has no discretion” under state law to spend tax dollars on migrants without legal residency.

JAIL OR PRISON

In cases involving disabled people with challenging behaviors, Newton said, the likelihood is they will wind up in jail or prison — and, ultimately, right back on APD’s doorstep.

”This is a sad situation,” Newton said.

“This sounds like an individual who will end up in the system one way or another — probably after a lot of misery in the criminal justice system. It’s a shame that services can’t be delivered sooner.”

About 6-foot-2, with dark hair and olive skin, Selim can be warm and affectionate one moment — but then explode in a temper tantrum the next. He has rudimentary math skills and has trouble writing or spelling his name. A source who knows the boy said he is moderately mentally retarded, and suffers from a severe emotional disturbance.

Selim’s parents brought him to Miami in August 2001 from Turkey, and overstayed their tourist visa. His father abandoned the family two years later, his immigration attorneys say.

In the spring of 2008, Selim’s mother took him to Miami Children’s Hospital for care — and then essentially left him there, said Aidil Oscariz, one of his attorneys.

The mother, Oscariz said, was overwhelmed by Selim’s medical needs and difficult behaviors.

At the end of April 2008, Selim was declared a dependent of the state and placed in foster care with Our Kids, the private, not-for-profit agency that last month renewed its $95 million annual contract with DCF. He now lives in a group home where he receives round-the-clock care, medication and therapy.

Selim’s attorneys say he has flourished at the group home, and, recently, Miami-Dade Circuit Judge George Sarduy signed an order saying the child’s ”best interests” would be served by granting him legal residency.

LEGAL STATUS

Attorneys at the advocacy center are asking an immigration judge to grant the youth legal resident status, but unless the petition is granted, Selim could be detained by immigration authorities — a risk that petrifies his attorneys and caregivers. He also could end up homeless.

”It would destroy him,” said the source familiar with the boy’s case. “It would, literally, be like putting a 2-year-old child in the middle of an intersection. He has no idea how to fend for himself. Whatever progress he’s made would completely crumble.”

Source: http://www.miamiherald.com/news/miami-dade/story/1125524.html

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Autism Telehealth Summit 2009

July 2nd, 2009

The Autism News | English

2009 Autism Telehealth Summit

With increasing incidence, escalating health care costs, and lack of available specialists, promising initiatives are underway to leverage new health technology that can help improve treatment to chronically ill children and others struggling with behavior disorders. These technologies, and novel clinical models, have the potential to transform delivery of health care for patients with autism – from anywhere to any specialist in the world. referencing primarily the health challenges facing those with autism, this Summit will explore the role of technology to improve treatment and research, and to determine a roadmap for employing health technology roadmap for the future.

Lt. Col. Tim Lacy, MD: Air Force interest


Why the U.S. Military is Interested in Autism, Behavior Imaging, & Telehealth


Dr. Peter Yellowlees: Information Age Health


Your Child With Autism’s Health in the Information Age

Ms. Patricia Guidry: Medicaid & Telehealth

Dr. Tyler Whitney: Helping Autism Families


Treating Idaho Families with Autism Spectrum Disorders

Dr. Anne Kelly: Novel Nursing Models


Health Technology and Novel Nursing Models to Improve Treatment

Dr. Gregory Abowd: B.I. Capture solutions


B.I. Capture – Part of the Behavior Imaging™ Solution

Mr. Ron Oberleitner: Behavior Imaging

Behavior Imaging and Autism Telehealth

Dr. Robert Hendren: Autism Telehealth


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School battle over autistic boy is settled

July 2nd, 2009

By Tim Healy

Thursday July 02 2009

A HIGH Court dispute over a secondary school’s refusal to enrol a 14-year-old boy with autism was settled yesterday.

Colaiste Chiaran Community School in Leixlip, Kildare, had brought the action, claiming a decision by a Department of Education-appointed committee requiring it to admit him had failed to observe its enrolment policy.

Following agreement yesterday between the school and the department, Mr Justice Kevin Feeney quashed the original decision requiring the boy to be enrolled, on grounds that the committee involved had made its decision on “legally irrelevant” considerations.

The judge said the court would recommend that a new committee would address the suitability of the child, having regard to the school’s admissions policy, probably in the first week of August.

unit

During the hearing, the court heard the boy applied to be enrolled in September last and was turned down by the school in October.

The mother appealed and the department-appointed committee decided he should be enrolled because the school had capacity in a special unit for autism and because it was the school of choice by his parents.

The school board of management had sought an order quashing the decision, claiming it was irrational and, in reaching its decision, it failed to take into account relevant material, including the fact the school could not cater for his needs. The court also heard yesterday the child had been receiving home tuition.

Mr Justice Feeney also ruled that the the Department of Education is responsible for paying the costs, for one day of the two-day hearing, for the school and for the mother who was a notice party in the proceedings.

Source: http://www.herald.ie/national-news/courts/school-battle-over-autistic-boy-is-settled-1802384.html

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Sausalito man accused of molesting autistic boy

July 2nd, 2009

The Autism News | English

By Gary Klien | Marin Independent Journal

A 51-year-old Sausalito man has been charged with molesting an 11-year-old autistic boy in Minnesota, according to court documents.

Stephen Joseph Magner is being sought on a warrant charging him with nine felonies: four counts of sexual penetration of a child, each count carrying up to 30 years in prison; four counts of sexual contact with a child, each carrying 25 years; and one count of soliciting a child to engage in sexual conduct, a potential three-year sentence.

The charges were filed in Olmsted County, Minn., where police in Rochester opened an investigation in April after the boy’s mother called authorities.

The mother said the boy’s older sister found him looking at gay male pornography on the Internet, and when she asked him about it, he said he was looking at photographs of what he and Magner did.

Magner, who is close to the family, visits Rochester several times a year and had last seen the family in November.

The mother said her son’s autism gave weight to his account because he is “very literal and does not lie,” according to a Rochester police affidavit.

In a subsequent interview with a police investigator, the boy said sexual contact occurred on two occasions while Magner was visiting, once during the day when his parents were away, and once at night in a hallway.

On April 15, the boy’s mother, working with police, placed a tape-recorded phone call to Magner. The suspect admitted to sexual contact with the boy and masturbating in front of

him, saying the boy seemed curious about gay relationships and Magner “felt it was okay for him to teach (the boy) about sexuality,” the police affidavit said.

Magner also confirmed telling the boy “it was their secret because it was against the law,” police said.

A Minnesota judge signed a warrant for Magner’s arrest on June 26.

Authorities said Magner lives in the 200 block of Fourth Street in Sausalito.

Source: http://www.marinij.com/marinnews/ci_12744419

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