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Posts Tagged ‘health’

Health research one winner in Obama budget

February 1st, 2010

The Autism News | English


(
Photograph: Jim Watson/AFP/Getty Images)

By Maggie Fox | Health and Science Editor (Reuters) | National Post

WASHINGTON (Reuters) – Health research is one potential winner in the budget proposed by President Barack Obama Monday, with the National Institutes of Health down for an extra $1 billion for medical research.

It also allocates $25.5 billion for six months to help prop up Medicaid, the state-federal health insurance plan for the poor, and provides $1.4 billion for food safety efforts and $3 billion for AIDS prevention.

Much of the new money goes to basic medical research funded by NIH, which typically pays for projects at academic centers. Some is eventually licensed to drug and biotechnology companies to make into commercial products.

“To accelerate progress in biomedical research, NIH investments will focus on priority areas including genomics, translational research, science to support health care reform, global health, and reinvigorating the biomedical research community,” the budget reads.

Translational research is shorthand for taking basic medical research done in lab dishes or animals into applications that can help people, while genomics is the study of the DNA map.

NIH director Dr. Francis Collins told Reuters in an interview last month that he wanted to push his agency to look for quicker “real-world” applications for research, such as turning discovery of a new disease gene into a diagnostic test for the disease.

He also said NIH could do more to help improve the U.S. healthcare system, for instance by conducting comparative effectiveness research to find out which treatments are the best.

Obama’s proposed budget also includes $286 million for the Agency for Healthcare Research and Quality to do comparative effectiveness research.

As it did last year, the budget earmarks $6 billion for cancer research, including the start of 30 new trials in patients in 2011.

And as Obama promised last year, it designates $222 million for autism research. The U.S. Centers for Disease Control and Prevention now estimates that one in 110 U.S. children are diagnosed with autism or related disorders, and no one known how much of this is due to better or more complete diagnosis and how much of it may be new.

The total NIH budget rises to $32 billion in 2011 under Obama’s proposal, up from $30 billion in 2009 and an estimated $31 billion in 2010.

Source: http://www.nationalpost.com/life/health/story.html?id=0492c967-327c-4f9f-b17a-6959f6557666

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General Mills Launches Website to Help Consumers Seeking Gluten-free Foods and Recipes

December 4th, 2009

The Autism News | English

By General Mills

MINNEAPOLIS – (Business Wire) General Mills has created liveglutenfreely.com to provide consumers with information on gluten-free products and gluten-free recipes. The site lists General Mills products labeled gluten-free and features kitchen-tested recipes for preparing an array of gluten-free foods.

“One of the most frequent inquiries our customer service department receives is ‘What products are gluten-free?’” says Katie Lay, marketing manager, General Mills Health and Wellness division. “Consumers should always consult product labels prior to purchase, but our new website can give them 24/7 access to information about General Mills’ gluten-free products. We also created an electronic newsletter by the same name that consumers can subscribe to when they visit liveglutenfreely.com. Gluten-free product information and gluten-free recipes will be sent directly to their inboxes.

“General Mills is one of the leading food manufacturers responding to consumers concerned about gluten,” says Lay. “We recently launched a line of Betty Crocker gluten-free dessert mixes, and we have many additional products labeled gluten-free. For example, our Yoplait yogurt, LÄRABAR fruit and nut bar, Betty Crocker Fruit Snack, and Chex cereal product lines all contain several gluten-free items. All this information is included on our new site. Anyone who has adhered to a diet of any kind knows that it’s easier when there are a variety of foods to choose from and recipes to help you.”

Michelle Tucker, M.S., registered dietitian and senior scientist of the Bell Institute of Health and Nutrition, says liveglutenfreely.com is a great resource for the one in nine U.S. households watching, reducing or avoiding gluten intake. “The web site is an excellent tool to help the growing number of consumers seeking information on gluten-free foods,” says Tucker. “But consumers need to remember that it’s essential to always read ingredient listings and look for the words gluten free near the nutrition and ingredient list on package labels before adding a food item to their shopping cart.”

Source: Newswire

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Exercises tailored for kids with autism

November 26th, 2009

The Autism News | English


Seneca Valley School District physical education teachers Eric Grove and Michael Serventi demonstrate fitness techniques during a presentation by Eric Chessen, left, founder of Autism Fitness. (Pam Panchak/Post-Gazette)

By Mark Roth | Pittsburgh Post-Gazette

Like most parents, those who have children with autism want them to be physically active and healthy.

And like other parents, their first option is often Little League or soccer, says Elliot Frank, chairman of ABOARD, a local autism advocacy and educational group.

“For some of our kids, though, running around a field kicking a ball to put up a point on some abstract scoreboard doesn’t track very well,” Mr. Frank said.

In addition, many children with autism have mild physical disabilities, from toe walking to lack of coordination, that make it difficult for them to succeed in regular team sports.

Or, as autism fitness expert Eric Chessen says, “if kids fail at something over and over, they no longer will want to do it.”

Mr. Chessen, who says he is one of the few people in the nation focusing exclusively on autism and physical fitness, spoke at a conference sponsored by ABOARD Friday at the Regional Learning Alliance in Cranberry.

“You have to be physically fit to participate in sports,” he said, “but you don’t have to participate in sports to be physically fit.” Besides, he said, “there’s a big difference between kids who want to play sports and parents who want their kids to play sports.”

Building on that philosophy, Mr. Chessen, founder of Autism Fitness, a Long Island business, has built a phys ed program for children on the autism spectrum that focuses on five basic movements: pushing, pulling, rotation, squatting and locomotion.

Using volunteers from the physical education staff at the Seneca Valley schools, he demonstrated all five motions, using simple equipment like pouches filled with sand and giant rubber bands.

For pushing, one volunteer lay on his back and threw a sand ball to someone standing over him. For pulling, two people pulled in opposite directions on the oversized rubber band, and a third man pulled back on the center, turning it into a slingshot.

For rotation, two men stood back to back and then swiveled to pass the sand bag to each other; for squatting they stood back to back and passed the sand ball between their legs; and for locomotion, one of them put the rubber band around his waist and tried to run forward while another pulled back on it like a leash.

By teaching such basic movements and then building them into a chain of activities, Mr. Chessen said, “we work to maintain their strengths, overcome their deficits and move on from there.”

Mr. Chessen, 29, got his bachelor’s degree in forensic psychology, but then became a fitness trainer and earned a master’s in exercise physiology at California University of Pennsylvania.

One summer, a friend asked him to develop a fitness program for teenagers with autism in New York City, and “I was fascinated by it, and I thought, this is something really worthwhile for them and also worthwhile professionally for me.”

Brimming with energy and pacing constantly on the stage at the Regional Learning Alliance, Mr. Chessen emphasized how important it is to make sure fitness activities also enhance the children’s emotional control and thinking ability.

Children with autism often have distinctive repetitive behaviors, and “if I’ve got a child who usually jumps up and down and makes a loud vocalization and then runs across the room, and I can substitute working with a medicine ball or moving around like an animal, that gives him a larger repertoire of things to do that are functional that are going to enhance his life overall, and will eradicate some of those maladaptive behaviors.”

The animal movements are a major part of his toolkit, he said, and he made sure that many of the 170 people registered for the conference experienced it firsthand.

After asking everyone to move to the back of the room, he demonstrated a bear crawl, and then asked everybody to use it to get back to their chairs. The movement involved people getting on their feet and hands and kicking their legs upward toward their rear ends as they moved forward, many of them huffing and giggling along the way.

“You can devise an entire fitness program based on animal movements,” Mr. Chessen said, “and my kids especially like the bear crawl, because they love the fact they can kick their own butts.”

The fitness exercises can easily add an educational component, he said. One example is having children jump from one large letter on the floor to another to spell a certain word.

And they enhance education in another way, he said, because study after study has shown that regular exercise helps children think more clearly and have longer attention spans.

In the end, he wants to give the children fitness habits that can last a lifetime. And in the process, he hopes they avoid the maladies that afflict many people later in life.

“These kids already face a lot of challenges,” he said. “To add certain cancers or type 2 diabetes to that would be a real disservice to the population as a whole.”

Source: http://www.post-gazette.com/pg/09329/1016099-114.stm

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Three University of Utah Department of Psychiatry researchers Find New Genetic Link for Autism

October 11th, 2009

The Autism News | English

Video Courtesy of KSL.com

By  Press Release

SALT LAKE CITY – Three University of Utah Department of Psychiatry researchers are part of an international team of scientists that has identified a novel region of the human genome that may confer susceptibility to autism.

Using genome information from more than 1,000 families with multiple affected individuals, including more than 150 Utah families, the researchers discovered a region on chromosome 5 that was significantly associated with autism. Their finding highlights the importance of genetic variation in the development of autism, according to a study published Oct. 8, 2009, in Nature.

Autism is a neurodevelopmental disorder that leads to impaired social interaction, challenges with communication, repetitive behaviors, and restricted interests. Although autism is a heritable disorder with more than 90 percent heritability by twin and family studies, attempts to identify genes that increase susceptibility to autism have met with limited success.

“Autism and other autism spectrum disorders are complex diseases,” says William M. McMahon, M.D., professor and chairman of psychiatry at the University of Utah School of Medicine and a contributor to the study. “While previous research and familial studies have suggested that there are strong genetic components that predispose to autism, this study adds to accumulating evidence that multiple rare mutations, rather than a single mutation, contribute to autistic susceptibility.”

The scientists first studied 1,031 families, with a total of 1,553 children affected with autism, from the Autism Genetic Resource Exchange and U.S. National Institutes of Mental Health repositories. They discovered that variations in a region on chromosome 5 near a gene called semaphorin 5A ( SEMA5A ) were linked to the development of autism. SEMA5A is a gene that is thought to be involved in axonal guidance, the process by which nerve cells send out fibers to conduct electrical impulses.

“Earlier studies have shown that the expression of SEMA5A is lower in the peripheral blood of individuals with autism,” says Hilary Coon, Ph.D., also a co-author on the study and U of U professor of psychiatry. “It is reasonable to think that disruptions in genes involved in how axons in the brain find their correct targets might contribute to autism susceptibility, and this study provides additional evidence implicating SEMA5A.”
To confirm their findings, the researchers performed replication studies using data from the Autism Consortium, Autism Genome Project, and other autism family samples from around the world and Utah. They also compared brain bank tissue from 20 persons with autism to tissue from controls and found that expression of the SEMA5A gene was significantly lower in the brains of those with autism.

“It is worth noting that the genomewide significance of this region on chromosome 5 was only found when the results from the initial large set of families and the replication families were pooled in a meta-analysis,” says Coon. “Nevertheless, SEMA5A is an interesting candidate gene for autism susceptibility because it codes for a protein that is both attractive and inhibitory for developing neurons.”

The study authors also suggest that, based on their findings, there are likely to be multiple rare mutations leading to autism susceptibility and, even when the same gene may be involved in susceptibility across multiple people, there are likely to be differences in the exact mutations from one person to the next. In fact, additional evidence from this study suggests that common genetic variation with moderate to strong effects on the clinical manifestations of autism is unlikely to be found.

“This study really highlights the complexity of the genetics underlying autism,” says Coon. “We are grateful for the enormous effort given by thousands of autism families from around the world, and particularly for the continued involvement of our local families here in Utah. These international collaborations may provide the keys to unlocking the secrets of complex diseases such as autism.”

Judith S. Miller, Ph.D., U of U associate professor of psychiatry, also was a co-author on the study, which was funded in part by Autism Speaks. Additional support for the University of Utah Autism Research Project comes from the Utah Autism Foundation and from the National Institutes of Health.

Source: Media-Newswire.com

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How to Tell if Your Kids are at Risk for Autism (and Other Neurological Injuries) from Vaccines

August 21st, 2009

The Autism News | English

By Dr. James P. Blumenthal | Physician, Defeat Autism Now! | The Huffington Post

Even as controversy swirls around vaccines and autism, a set of lab tests can now identify many of the children who are most at risk for the kinds of toxic neurological injuries that can cause autism, Asperger’s, attention deficits, and the rest of the pervasive developmental delays. Knowledge is power and when parents know what their children’s risks are, they can then make more rational, evidence-based choices in collaboration with their pediatrician.

We and our kids live in this increasingly toxic soup of a world. Not exactly the post-Apocalyptic set of a Kurt Russell movie, but a lot more toxic than the world our grandparents, our parents, or even we grew up in.

In the United States, the EPA, FDA, Consumer Product Safety Commission, and Occupational Safety and Health Administration each regulate various chemicals that we are exposed to. The Environmental Protection Agency alone currently tracks more than 83,000 toxic industrial chemicals under the Toxic Substances Control Act. These chemicals make their way into our air, food, and water, and even into the umbilical cord blood of infants according to a 2005 study by the Environmental Working Group.

As the world we live in is becoming more toxic, the challenges to our natural detoxification systems and to the genetic programming that creates and maintains those systems is under increasing attack. Some kids are already showing genetic impairment from several generations of increasing exposure to environmental poisons. The bad news is that these kids are more at-risk for adverse effects from further toxic exposure than other kids. If there is good news, it is that are now tools to help parents and doctors identify which kids are more at-risk and which ones are not.

In order to stay alive and healthy, we have to be able to clean impurities out of our body. Fortunately, we are designed to be able to do just that. At least, up to a point. Today there is a whole body of books and publications, like Detox Box by Mark Hyman, MD and Our Toxic World: A Wake Up Call by Doris Rapp, MD, telling us how to keep those processes working. If they function properly, we can get rid of most toxins and wastes pretty well. This is vitally important, which is why we have not one but several different detox systems in our body designed to protect us from toxic chemicals from the outside world and from the toxic by-products of running our inner systems. When someone drinks too much and winds up “praying at the porcelain altar” or they eat something they shouldn’t and experience “Montezuma’s Revenge”, we see evidence of our first line of defense: getting rid of what’s noxious as fast as possible. If we can’t simply get rid of the poison out of one end or the other (yes Mrs. Reidy, I know that’s Hardly Dinner Table Conversation), then our liver has to break it down or “metabolize” it into something that’s safe for our kidneys and other organs of elimination to process and excrete. If we can’t simply ‘get rid of it’ or ‘metabolize’ it, then we hold on to the toxin until our body figures out what to do with it. Most of this storage takes place in our liver, kidneys, brain, ‘adipose’ or fat tissues, and mitochondria, the energy factories in each of our cells. And that is where most of the trouble starts.

The machinery that runs these clean-up systems is programmed to exist in us, to keep itself running smoothly, and to be able to protect us from a certain amount of internal and external junk. But just as cargo ships and supertankers that are built to withstand the usual storms at sea can be sunk by 100 foot high superwaves, our detox systems can be overcome by either too many or too-strong toxins. And if we are exposed to enough pollutants over time, then even our genetic programming starts to break down and the genes we pass along to the next generation start showing problems. Think of Rob Schneider’s comedy Multiplicity. As he cloned himself and then cloned the clones, each successive clone became a little dimmer and less perfect than the one before it, kind of like copying copies on a Xerox machine.

Our kids’ detox pathways are facing two kinds of challenges. One is that the genetic or “genomic” messages that tell their bodies what and how to detoxify are getting disrupted as they are being passed from one increasingly toxic generation to the next and so some of the machinery may not be running exactly the way it should. The other problem is that the machinery that may be running not-quite-right already is being asked to detoxify a larger quantity of more-toxic ’stuff’ than ever before. Combine this with a child’s tender and rapidly growing systems that depend on getting clear genetic messages on how to develop and we have the background for the current epidemic of autistic spectrum and attention deficit disorders that is filling our schools and the news.

And it’s not just our kids who are taking the hit. It is happening to us, too. The same toxic patterns of exposure that are showing up in children are also causing all sorts of auto-immune problems in increasingly younger adults. Cancers that only used to show up in 60 and 70 year olds are frequently showing up in 40 and 50 year olds3. Hashimoto’s thyroiditis, MS, ALS, lupus, and the rest of the auto-immune disorders are at an all-time high even with more research and money being thrown at them than at any other time in history.4

Now, before you throw the towel in, there IS something you can do about this. Remember that we started this article by stating that “knowledge is power”. One of the best places to start is by doing the genomic testing that can tell you how intact your child’s (or your own) detox systems are and the functional testing that can tell you how well they are working. These have become surprisingly affordable in the past few years with good quality genomic testing being available for under $450 and liver detoxification function testing being available for less than $100.

In order to do either of these tests, you simply need to have your doctor request that the laboratory send them the supplies (called a “test kit” ). If they don’t or won’t do this type of testing, we can also order the tests for you and help you or your doctor with the interpretation.

For the genomic testing, they will draw and process a small vial of blood and send it off to the lab that runs the test. It takes a couple of weeks for the tests to be processed and then the results will come back to your doctor. You make an appointment with them as usual, and they can explain the lab results to you so that you will know what your child’s or your own genetic challenges are with detoxification. Because the detox systems are genetically ‘wired for’ but not really developed in infants and very young children, this is a particularly good test to run for them. We’ve used this panel with kids as young as 12 months old whose parents wanted information before giving them some of the multiple vaccines. No lab test is infallible, but it can give you a big head-start on understanding what your child’s risks are and knowing how to take care of them and protect their health.

The functional detoxification panel uses saliva and urine and is probably better for school aged and older kids through adults because they need to participate a little more to make the test work. They take a No-Doz tablet and then collect saliva 2 and 8 hours later to test the first part of their liver detox system. Then, they take a couple of aspirin and tylenol and collect urine overnight and first thing in the morning to test the second part of liver detox. The saliva and urine are sent off to the lab and, like the genomic profile, it takes about two weeks to get results back. This is less invasive but a little more complex than the genomic test and it is a better test to use for older kids and adults because their detoxifying systems are developed fully enough for the test to be able to measure them and make sense.

Knowledge is power and these lab tests can give you the power to make wiser, safer choices about your children’s and your own health.

Source: http://www.huffingtonpost.com/dr-james-p-blumenthal/how-to-tell-if-your-kids_b_265517.html

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Keeping your child healthy: The latest guidelines for well-child visits

July 14th, 2009

The Autism News | English

By Lila Havens | myOptumHealth | 21 News Now

Last year, the American Academy of Pediatrics (AAP) updated its recommendations for well-child checkups from birth through age 21. The new guidelines strengthen the focus on prevention and finding problems early, when treatment has the best chance of success.

One of the biggest changes is the addition of screening for autism disorders in the second year of life. This change comes on the heels of AAP guidelines that help doctors identify the signs of autism and refer children for treatment. Early intervention has been shown to have long-term benefits.

In general, the update includes more well-child visits in the early years and some changes in the testing done during these visits. The added visits help doctors:

  • Keep immunizations on schedule
  • Observe the developing child more closely
  • Address any concerns the parents have

These extra visits can also help a doctor know a child better and build a trusting relationship.

What’s changed?

The main changes include:

  • Checking newborns within two to three days after hospital discharge for feeding problems and jaundice
  • Screening for developmental problems at ages 9, 18 and 30 months
  • Screening for autism at 18 and 24 months
  • Referral to a dentist starting at 12 months
  • Checking body mass index (BMI) starting at 24 months, which can help a doctor assess the risk for weight-related problems
  • Assessing for risk factors of cholesterol problems (dyslipidemia) at ages 2, 4, 6, 8 and 10 years and then every year, with cholesterol testing done between ages 18 and 21
  • Three new routine visits, at ages 30 months, 7 years and 9 years

How often does my child need a checkup?

The AAP recommends that:

  • Newborns should see their doctor within three to five days after birth and within two to three days after leaving the hospital.
  • Babies should be seen at age 1 month, 2 months, 4 months, 6 months, 9 months and 12 months.
  • Toddlers should be seen at age 15 months, 18 months, 24 months and 30 months.
  • After age 3, children should see their doctor once a year.

These guidelines are for healthy children. Children who have health problems or are at risk may need to see their doctor more often.

Insurance companies may have their own schedule for well-child visits. Check your policy to see how many well-child visits are covered.

Source: http://www.wfmj.com/Global/story.asp?S=10707445&nav=menu491_2_5

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Help for People Who Are Sick and Tired | Cookbook

July 3rd, 2009

The Autism News | English

By The Super Allergy Girl

There is a growing interest in the relationship between food and health as more and more consumers reach for organic foods and foods made without chemicals, hormones and additives. Motivational speaker and specialty cookbook author Lisa A. Lundy makes available for the first time to the public a document aptly titled “Could Food Be Making You Sick and Tired?” which you can now download free from her website. The document is an excellent primer addressing why there is such an explosion in the gluten-free diet, the value that the Feingold Association (www.Feingold.org) offers to people who want to be healthy, as well as the prevalence of celiac disease and other health conditions that are often helped by a change in diet including autism, ADD, ADHD, gastrointestinal issues, Crohn’s disease, irritable bowel, behavioral, emotional and learning issues in children, allergies, depression and anxiety for starters.

Once source for people feeling sick or tired can be undiagnosed celiac disease. According to the University of Chicago’s Celiac Disease Program, just over 3 million Americans have celiac disease, yet 97 percent of the people with celiac disease are undiagnosed. Celiac disease is more common than several other diseases that have become “household” words such as epilepsy, cystic fibrosis, hemophilia, Parkinson’s disease, ulcerative colitis, Crohn’s disease, rheumatoid arthritis, and multiple sclerosis.

Celiac disease is an autoimmune disorder that can affect both children and adults. In people with an active case of celiac disease, eating gluten, an amino acid sequence found in wheat, barley, rye, some oats and other grains containing gluten, triggers the body’s immune response and can damage or destroy the villi in the small intestine. While there is no cure for celiac disease, strict adherence to a gluten-free diet is the recommended treatment. Undiagnosed and untreated celiac disease increases the risk of cancer by 200-300% according to a fact sheet produced by the Celiac Sprue Association USA, Inc., a non-profit consumer organization dedicated to supporting individuals with celiac disease has a website with information and resources on the topic: www.CSACeliacs.org

“More and more Americans are reaching for organic foods and foods made without additives, preservatives and food dyes because consumers are realizing that food can have a big impact on how they feel. U.S. food manufacturers are reacting to consumer demand and preferences by removing additives,” Lundy stated. “It is an exciting time for consumers as we now see some of the major food producers on TV promoting the fact that their food is either organic or made without hormones, antibiotics, preservatives or additives” Lundy said.

Lundy is the author of The Super Allergy Girl™ Allergy & Celiac Cookbook (From A Mother Who Knows™), a gluten-free, casein-free, dairy-free, egg-free, peanut and tree-nut free and other allergen-free resource for both the beginner and experienced baker. She has more than a decade of experience with food allergies and celiac disease and has taught gluten-free baking classes in the Western New York community for many years.

Her cookbook, with more than 225 excellent recipes and over 100 pages of essential information has received extraordinary reviews from other mothers as well as from internationally known physicians like Doris J. Rapp, M.D. www.DrRapp.com. Order now to receive 10% off the list price of this exceptional book from www.TheSuperAllergyCookbook.com using the promotional code SICKandTIRED on the order. The 10% discount expires on July 31, 2009, and has a limit of one per customer.

Baking Videos for Allergy-Free Foods:

One Gluten-free, Allergy-free Recipe Multiple Uses: Part I

A terrific, versatile recipe used to make gluten-free and allergy-free rolls, French bread, Danish, waffles, coffee rolls, pizza crust, and bread sticks! Preheat oven to 350˚F.

One Gluten-free, Allergy-free Recipe Multiple Uses: Part II

Part II of the versatile recipe used to make gluten-free and allergy-free rolls, French bread, Danish, waffles, coffee rolls, pizza crust, and bread sticks!

Tips for Gluten-Free and Allergy-Free Baking

Suggestions include using an oven thermometer, measurement equivalents, rolls vs. bread, and proofing yeast.

Special Pans for Special Effects in Gluten-Free Baking

Get a look at some of the various specialty baking pans that will give your gluten-free, casein-free, and allergy-free foods a great look

Save Time and Money on Gluten-Free and Allergy Diets

Great time-saving and money-saving suggestions for those on special allergy-free and gluten-free diets.

Ready-Made Gluten-Free, GFCF, and Allergen-Free Foods

See some of the commercially available gluten-free and GFCF foods for consumers on special diets.


Gluten-Free, Casein-Free Candy Making–Getting Started

Chocolates that are gluten-free, casein-free and allergy free are easy to make at home with your children.

Coloring Eggs for the Egg-Allergic

Here’s an alternative to dyeing eggs for those who are allergic to real eggs. See how you can have just as much fun with wooden eggs and paints!

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The Autism Treatment Acceleration Act and the Autism Sandbox

May 31st, 2009

The Autism News | English

By Shelley Hendrix Reynolds | The Huffington Post

For years, medical professionals and educators have hailed the successes of early intervention for children with all manner of challenges. For children with autism, those challenges often require years of painstakingly, patient individualized therapy to begin to improve their symptoms. For an average of one in 68 families nationwide, finding quality treatment for their child with autism, much less paying for it, is a daunting task – even when they have healthcare coverage.

Despite dutifully paying premiums to insure against the unthinkable that their child could be diagnosed with a disease or disorder, most parents of children with autism cannot get appropriate coverage to treat their child’s medical conditions. Not because these parents didn’t act responsibly and do their part but because insurance did not do their part. In addition to paying for premiums to cover basic medical care for appendicitis, strep throat or a broken arm, these parents pay for medical interventions out of their own pockets, often in excess of $50,000 a year.

If you are diagnosed with heart disease, cancer or diabetes, the top three health conditions adults face, you expect your insurance company to cover the doctor prescribed treatment. Autism affects more children than cancer and diabetes combined – yet when it comes to paying for treatment, families are on their own. They dangle by a single-strand financial thread on the verge of bankruptcy in an attempt to give their children a better life because the system they have invested in to protect them has intrinsically failed.

Why should you care about their plight as an average tax paying citizen without a child with autism? It directly affects your own checking account.

Every child in this country diagnosed with autism costs society an average of $3.2 Million for a lifetime of care above and beyond what a family pays – a cost that can be significantly reduced with appropriate intervention. With a minimum of 72 children diagnosed for every 24 hours that rolls off the clock, $230 Million is added daily to the bottom line for society 365 days a year.

At this writing, eleven states stepped up to the plate enacting laws requiring insurance companies to live up to their purpose and design – to pay for interventions that ameliorate these children’s diagnosed medical condition improving their quality of life. Two other states passed legislation which sits on their Governor’s desks awaiting signature. What sets this policy apart from standard insurance parity is that these laws require coverage for Applied Behavior Analysis (ABA) therapy, one of the most expensive forms of autism therapy which is not used to treat any other medical condition.

Play is the work of children and teaches them more things than you may realize. Through play, we learn about the world and how to get along with others. We learn how to navigate difficult situations and handle our fears. We begin life playing alongside our peers in parallel play that allows us to interact in an extremely safe way – indirectly. As we mature, we develop creativity that allows us to invent solutions to age old problems or engineer bridges, dams and trips to the moon.

What do you do when your child’s play is paralyzed?

We have spent countless hours teaching my son, Liam, who has autism how to play. The first lesson we repeated for nine months in a three hour session each day until he learned it. Little Fisher Price People walk up three stairs of a slide saying “Up! Up! Up!” then “WHEEEEEEE!” as they would slide down. All in all, teaching Liam how to do this was nearly a $10,000 investment out of pocket but it created a building block on which to learn – it created imitation.

As an ordinarily inherent part of the developmental process for most children, grasping the imperative concept of teaching a child to play is difficult. Pretending to eat a thick slice of veggie plastic pizza and say, “Yum! Yum!” Dressing Barbie dolls to sharpen his fine motor skills. Showing him what to do once you get inside the Little Tykes playhouse. Building with blocks instead of picking up the container and dumping them onto the floor repeatedly.

One of our measurable goals for a full twelve months was “Liam will be able to stack four blocks on top of one another.” Once that was mastered, he had to stack the blocks in patterns matching his therapist demonstrating what we soon realized was an endless stream of building blocks for a life a long way from mastery.

Over eleven years, thousands of dollars and hours spent on intensive biomedical, behavioral and sensorial early interventions made it possible for Liam to sit quietly in his room as he did this afternoon, unattended, creating Lego buildings for imaginary people. Downstairs, I smiled listening to the chatter upstairs and called to him. He yelled back, “Oh Mom, it’s ok! I am just busy playing.” I tiptoed upstairs hoping I wouldn’t walk in on an overflowing bathtub or shaving cream smeared all over the place only to find him hard at work using his acquired skills to navigate his Lego people through social situations.

Practice up there on the floor of his bedroom might just make perfect on the playground at summer camp next week.

Learning play skills and building on them have helped Liam to perform tasks like taking real food, putting it into a pot and cooking it – just like any other child. Now that he is a mere five years from official adulthood, we have put the plastic food aside so that he can learn how to cook for himself. Thanks to the movie Ratatouille, Liam loves to assist in the kitchen during dinner preparations chopping vegetables for a salad or cooking on the stove. Without that seemingly crazy goal of block stacking years ago, his ability to imitate what he saw in an animated movie and bring that to life in our kitchen might never have developed.

No one would dream of treating a child with a life threatening illness at any less than what the doctor recommends. No one would ever expect that the public education system to be responsible for curing that disease and yet, insurance companies do just that…shirk their accountability to the education system instead of providing children with appropriate coverage when they are toddlers making them more likely to be mainstreamed into a regular education setting. Providing access to these treatments saves tax payer’s dollars, creates new job markets and most importantly, gives these children an opportunity to become tax payers themselves one day with independent lives via a fiscally responsible solution to a growing societal issue.

Regardless of our personal beliefs of the etiology of our children’s autism, whether it is genetic, environmental or a combination of both, all children deserve access to treatments that can help them. The financial relief that this will provide to families is unprecedented – including coverage for ABA, speech and occupational therapy, psychological and psychiatric services, pharmacological interventions, along with anything prescribed by that child’s doctor that is evidence based and medically necessary for treatment. Coverage like this frees up money to pay, albeit still out of pocket, for interventions mainstream medicine has yet to adopt while we wait for scientific research to catch up with what we observe in our homes.

What good is research resulting in treatment protocols that cannot be implemented to help a child’s medical condition because their parents cannot afford it?

Liam still acquires skills daily through ongoing treatment, piece by piece, block by block. Science continues to get closer to the answers to his condition daily, piece by piece, block by block. Finally society is stepping up to the plate and relieving financial distress that families have endured for decades by ending this discrimination and implementing fair coverage, piece by piece, block by block and state by state.

If you live in one of the 37 states that have not required insurance companies to end their discriminatory practices and provide access to the medical intervention your child deserves for the insurance premiums you pay each month, OR if you live in a state where enacted laws do not govern the self-insured company for which you work, you can change this practice. Ask Congress to co-sponsor the Autism Treatment Acceleration Act (S.819 and H.R. 2413)introduced by Senators Richard Durbin (D-IL), Bob Casey (D-PA) and Robert Menendez (D-NJ)and Congressmen Chris Doyle (R-NJ), Mike Smith (D-PA), Eliot Engel (D-NY) and Hank Johnson (D-GA).

For more information on the autism insurance reform movement and what you can do, visit Autism Votes to learn more about the Autism Treatment Acceleration Act.

If the autism community can use what we learned as children to play nice in the sandbox, share our toys and keep from fighting, imagine what we could accomplish.

Source: http://www.huffingtonpost.com/shelley-hendrix-reynolds/the-autism-treatment-acce_b_206613.html

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Teen Teaches ADD/ADHD & Autistic Kids Through Natural Horsemanship

May 31st, 2009

The Autism News | English

By Huliq News

Danielle Herb is a 15 year old Florida based teen CEO who owns a company called Drop Your Reins. Her self-branded training program shares the same name. Drop Your Reins teaches ADD/ADHD and Autistic kids self-calming techniques and how to overcome their fears through the use of equine assisted training, natural healing techniques and Natural Horsemanship.

Drop Your Reins is a revolutionary company geared towards helping parents to transition their ADD/ADHD and Autistic kids off of prescription medication.

Danielle Herb, a 15 year old teen entrepreneur developed program with the help of her mom Marianne St. Clair. They co-teach the program and assist parents with everything from diet & nutrition, understanding things in their environment that cause allergic reactions and self-calming techniques they can teach their children to do at home on their own.

Source: http://www.huliq.com/0/81607/teen-teaches-addadhd-autistic-kids-through-natural-horsemanship

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Pets bring health, happiness and healing

May 27th, 2009

The Autism News | English

By PhysOrg

Doctors may soon be prescribing their patients a script to adopt a cat or dog, given a recent study found an estimated $3.86 billion was saved on health spending in Australia, due to the benefits of pet ownership.

A growing body of evidence confirms the holistic health benefits people gain from animals, including social, mental, physical, psychological and emotional health.

Maggie O’Haire, from The University of Queensland’s Centre for Companion Animal Health and School of Psychology highlighted some of these benefits at the recent RSPCA Animals and Human Health Seminar.

“While we know the health benefits of animals can include a reduction in blood pressure, reduced risk of heart disease, increased sense of well-being and an increased feeling of connectedness to their community, what is less known is the value of animal-assisted interventions for children,” Ms O’Haire said.

By interacting with pets, children can learn valuable lessons in empathy, nurturing and non-verbal communication, she said.

Most recently the benefit of animal-assisted therapy has been linked with helping to encourage an autistic child to speak, Ms O’Haire said.

“What’s interesting to note about such interventions is the little amount of research that has actually been done to understand the benefits. Especially given that such programs are relatively low in cost in comparison to other alternative practices”, she said.

Acknowledging the need for increased evidence, Ms O’Haire, in conjunction with the Centre for Companion Animal Health and School of Psychology is beginning research into the effect of animal-assisted activities for children with autism spectrum disorder in the classroom.

Provided by University of Queensland

Source: http://www.physorg.com/news162660892.html

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